Tag: fatherhood

Alone Together

I don’t know where you’re going, but do you have room for one more troubled soul?

That’s a line from the Fall Out Boy song Alone Together. The title itself is an oxymoron. How can someone be both alone and together at the same time?

There are a lot of ways to interpret it. Some people hear it as being about drugs. Others think it’s about two people in the same physical space, but still feeling isolated and apart.

That idea feels familiar. During the pandemic, my family and I were together in the same house, but often living separate lives. We ate in different rooms. We passed each other in the hallway with only transactional conversations. We were together, but we were also alone.

Sometimes, that distance can feel easier. It can be exhausting to be emotionally available all the time, especially when there is no break or separation. But if that becomes the norm, it’s a dangerous road. The road to ruin, as the song puts it, “and we started at the end.”

There’s another way to look at the phrase, though. You can also be physically alone from the rest of the world, but emotionally together with someone else. That’s how I often feel with my son. We are separate from much of the world—by circumstance, by hospital stays, by the realities of epilepsy—but in that separation, we are together. Us against the world. Not really alone at all.

That’s the tension at the heart of the song. It’s also the tension I feel as a parent and caregiver. Lonely, but not alone. Together, but sometimes separate. Finding connection even in isolation.

Let’s be alone together. We can stay young forever. Scream it from the top of your lungs.

Scars and Survival

Last summer, I was at the pool with my son.

It wasn’t that long ago that he needed to stand on his tiptoes to keep his head above the water. Now, standing over six feet tall (the tallest in our family, as he likes to tell everyone), only his waist is submerged. His skinny torso sticks up like a twig in a pond.

His body carries many markers from his life. There are scars from his adventures and falls. There are stretch marks on his lower back from his growth spurt. And there are remnants from the incisions on his chest and neck from his surgeries that implanted the two devices and the leads to his brain.

It’s hard not to notice, prominently pushing against the skin on his chest, the two implants. Against that skinny frame, with no fat or muscle to buffer them, the devices look huge. They are a permanent alteration to the contours of his body, captured on his chest like a relief map, describing the differences in elevation and the way the land rises and falls. And similar to the permanence of mountains in our lifetime, they will remain a defining part of his body’s landscape.

Of all the recorded history on his body, the implants are the hardest for me to see. The scars, even those from his surgeries, can be rationalized away as everyday occurrences of a growing child. I’ve had a scar above my eye since I was five, when I chased my sister under a glass table and forgot to duck. I’ve had a scar under my chin from when I was ten and tried to jump over a softball on my bike. And I have scars on my hands and arms from the countless times that I clumsily pulled something from the oven without protection and burned myself.

But the implants can’t be explained away as normal consequences of living. They are more than just damaged or healing skin and tissue. They are unnatural, and there is no alternative explanation to the reality that they are devices inserted into his young body to help reduce his seizures. They are visible reminders of his challenges—challenges, like the devices themselves, that he will likely carry for the rest of his life.

Seeing them, it’s easy to fixate on the implications and miss out on the significance of the moments that they enable. He’s alive. He’s having fewer seizures and has stopped a few medications. He and I were in a pool playing basketball, spending time together, and laughing. The reason he has the devices may be overwhelming, but the life they allow him to live is a medical miracle.

I still see the devices when I look at him, but I’m learning to see them differently. They don’t just mark his struggle—they also mark his survival. They are symbols of how far medicine has come, of how far he has come, and of the moments we still get to share.

Ballpark Memories

Growing up, I didn’t spend much time with my biological father. My parents divorced when I was two, and my mother had custody of my sister and me.

Our father would pick us up for holidays, or to swim in our grandparents’ pool on those hot New England summer days. We would occasionally visit his mother in New Hampshire. But my favorite visits were the ones when he would take us to New York to see the Yankees.

A few weeks ago, a friend gifted my son and me tickets to see the Philadelphia Phillies. It was our first game this season, and I’m glad we got at least one in before the season ended.

Since it was just the two of us, it reminded me of the Yankee games with my father. I remember going to the games early and watching the players warm up. I remember running down to the first row next to the field, getting a closer look at them, and catching a ball tossed into the stands as they left the field. But even though I know he was there, I don’t remember my father at those games.

I don’t remember having meaningful father-son conversations. I don’t remember even talking about the game. I don’t remember us joking or celebrating the wins and the dramatic plays, or sharing the misery and disappointment of a defeat. It wasn’t a shared experience.

As I sat there with my son, I wondered how he would look back on this time with me. Will he remember how we bring our gloves to every game in case of a fly ball? Will he remember how I act surprised every time he eats an inhuman amount of hot dogs or a whole pizza? Will he remember how we call out to our favorite players, and will he see me on the other side of the high fives after a big play?

I am not trying to rewrite the past, but I can shape the present. My father’s absence taught me how important it is to be fully present when we are together. Not just sitting in the seat next to my son, but sharing in the joy, the laughter, and the heartbreak that come with the game.

I don’t just want him to remember going to games.

I want him to remember that we went together.