Hi, my name is Dave and I’m the father of an amazing, energetic, hockey-loving son who has epilepsy.
My family’s journey with epilepsy started in 2014. We were visiting Philadelphia ahead of a move to the city when my son had his first focal seizure. The first seizure is always the scariest, largely because it comes out of the blue and you never know what to expect or what to do when it happens.
His second seizure came as my wife and son were boarding a plane. The flight attendants cleared the aisle and an ambulance took them to the children’s hospital where he was officially diagnosed with epilepsy.
Since then, we have had a lot of ups and downs. We’ve spent months in the hospital, tried countless epilepsy medications, started the ketogenic diet, explored CBD, and we’re still trying to figure out what is causing the seizures and get them under control.
Why The Epilepsy Dad Blog?
This blog provides me with an outlet for the thoughts and emotions that I imagine are common for parents of kids with epilepsy or parents of children with any disability. I wanted to share my experiences because I’m hoping my words will help other people going through the same thing so they know that they are not alone.
I invite you to read this blog and to comment with your own thoughts and experiences. If you want to reach out to me, please check out my Contact page, follow me on Twitter (@Epilepsy_Dad), or leave a comment on a post that speaks to you.
Remember, you are not in this alone. There are countless resources for your child and for you as parents trying to navigate this often scary and misunderstood world. Don’t bottle it up. Find those resources so that you can do what you need to do for yourself so that you can do what you need to do for your child.