Then Things Changed

This is the first time in months where I have sat down to write.

Before I did, I skimmed my posts from earlier this year. I wanted to be reminded of where we were. Our family felt isolated and trapped in the city, and there was no hope of moving. My son was struggling with his virtual school, and there was no hope of finding a way of learning that would work for him.

I wrote those posts as a way to process my thoughts. I wrote those posts as a way to ask the universe for help. I wrote those posts because I had to get those feelings out. They were real. They are real. Putting them down in writing felt like the last act of acceptance that nothing was going to change.

But then things did change.

I’m writing this post in our new house. I’m writing this post early in the morning before my son wakes up and gets ready to go to his new school that is only a few miles away with kids that have challenges just like him. I’m writing this post the day after my son spent hours in the yard playing with other kids from the neighborhood who didn’t treat him like he was different at all.

The contrast between where we were and where we are is surreal, but I know things won’t always feel this way. My son is still seizing every day. The cognitive, social, and emotional gap between him and his peers is obvious, and it is growing. And the one constant thing in our epilepsy journey, for better and for worse, has been change.

At this moment, though, I am immeasurably grateful to have landed where we did, when we did. Because we needed it. Because we are together. Because we can breathe. And because for the first time in a long time and despite the struggles he faces every day, my son is happy.


Also published on Medium.

6 thoughts on “Then Things Changed”

  1. Thank you for sharing. We all benefit when we share and learn from one another and when we lift one another up. Your writing has been a blessing to me and our family. Thank you. May you remain steady during the challenges of life and find the joys and handle the sorrows.

  2. I am thrilled for you! Parenting is a balance of enjoying the moment, soaking it in and then knowing itโ€™s not going to last forever. I am happy you are letting, and wanting, to do more of the first two right now. I feel the whole world is soaking things in a little better right now, and that feels great. Congratulations on your new home!

Leave a Reply

Your email address will not be published.