epilepsy dad

Tag: fatherhood

  • Repeating History

    Repeating History

    In case you haven’t heard, we have a big election coming up in the United States. To be fair, many countries are seeing their politics follow the same loud, divisive, truth-adjacent bullying trend that was made popular by the success of one of our “candidates” in 2016.

    It’s even worse this year.

    It’s also terrifying to think this is the world my son will grow up in.

    Candidates are being elected and staying in power by peddling fear and hate for the “other.” The easy group to target is immigrants. Falsehoods about their choice of protein and taking over small towns across the country continued to spread long after they were disproved. But it’s a slippery slope to go from immigrants to those who support immigrants to any group that is different or believes differently. History has not been kind to people like my son, for example. People with disabilities were lumped into the “other,” the inferior, and the unworthy of life.

    Too many people believe and repeat the blatant lies coming from these candidates, either because they align with the way they want the world to be or because we have lost the ability to think critically, question what we are told, and discover the truth for ourselves. Even when all the data and science support a particular fact, if it goes against what they want to be true, they’ll lean into their doubt. They’ll claim the other side and media are biased for saying the same thing (e.g., facts), and they’ll listen to the pundits in their echo chamber because surfacing “alternative facts” makes them “unbiased.” They think their doubt makes them clever. They’re mistaking cleverness for ignorance.

    They think their doubt makes them clever.
    They’re mistaking cleverness for ignorance.

    Single-issue voters are willing to look the other way and ignore the unpalatable aspects of a candidate as long as the candidate holds (or says they hold) the same position on a specific issue. “Sure, this candidate is a felon, racist, sexist, fascist dictator, but they’re pro-life, which is the only thing that matters.” Worse, they’ll combine their logic with the doubters above and try to justify their position by convincing themselves that the other labels are misunderstood, out of context, or “just politics.” They can’t believe someone who agrees with their position on a key issue could be a monster, even if the candidate only claims to agree to get enough votes to push a much more dystopian, self-serving agenda.

    This includes people who believe that our political system is broken and that bringing in an outsider is the way to fix it. If one candidate represents the establishment, regardless of their policies or fitness to lead, they won’t get the vote. Even in a crisis where the country would benefit from someone who understands the system, and even if the non-establishment candidate is unqualified, a criminal, incompetent, and dangerous, they believe that voting for and electing an outsider will make the country better.

    When I was in history class, we read about World War II and asked how a country could elect a party and a person who would ultimately commit such atrocities on the world. I couldn’t understand how millions of people could minimize or normalize the extreme rhetoric, the hate, and the violence. It seemed so unfathomable that anyone could look the other way or fully support their country’s direction.

    But here we are, nearly a century later, repeating history. People are spreading the idea that our country has lost its way and that we need to go back, that outsiders are a threat to our national identity, and that the other side is what will cause our country’s collapse. Fear, hate, us versus them—it’s the same playbook. And the party and its people are going along with it because it’s more important to win and be in control than to be good and do good. When you’re willing to win at any cost, humanity loses.

    It makes me wonder if, 100 years from now, students will sit in a history class wondering how we let this happen. They’ll have the benefits of time and hindsight to see the similarities between parties trying to make their countries great again at any cost because they were too focused on looking back at what they thought their country was instead of looking forward to what it could become.

  • Breaking the Cycle

    Breaking the Cycle

    When our son was seven years old, after he had mostly stabilized and we had left the hospital, we began teaching him how to ride a bike. Or, rather, we began to reteach him how to ride a bike. The motor skills he developed riding a balance bike when he was three and then a bicycle with training wheels were wiped away and replaced by imbalance and ataxia during the early years of his seizures.

    We brought his bike to a city park and found a quiet corner near the grass. I got him on his bicycle and ran behind him, pushing from behind as he found his footing on the pedals towards my wife further down the path. After he found the motion, I would slow down, and he would continue under his own power until he reached his mom, who would help slow him down and repeat the sequence to send him back to me.

    I learned to run a bike the same way. My mother and grandfather pushed me on the street in front of my grandparent’s house for hours until I could ride alone. My mother probably learned the same way from my grandfather, who probably learned the same way from his parents. In many ways, parenting is a hand-me-down exercise where we learn how to be a parent from our parents.

    But what happens when the approach or behavior that was done to you is not what you want for your child? Whether it’s because new information invalidated an outdated approach or times have changed, the techniques may not apply today. Or, for many people, we’ve learned what was done to us is considered abuse and is not a legacy we want to pass down to our children.

    In those situations, our references are tainted. What we know is unusable. The only option we have is to figure it out for ourselves.

    Figuring it out is the scary part. I’m constantly afraid that I’m not doing the right thing as a parent and that I will end up doing it worse than my parents did.

    But maybe the fear is a sign that we’re on the right path.

    It shows that we’re not just blindly repeating the past but actively trying to do better. Learning to parent without a perfect roadmap is daunting, but we are making progress every time we break a harmful cycle or approach our children with more empathy and understanding than we were given.

    We may not have all the answers, but we have the ability to grow, adapt, and create a new kind of legacy—one built on love, effort, and the determination to raise our children with more care than we received.

    And in the end, that might be what matters.

  • What Matters is the Repair

    What Matters is the Repair

    Hello, Hindsight, my old friend.
    You’ve come to talk to me again.
    Because a mistake I made today
    Left its mark and pushed someone away
    And the shame that was planted in my brain
    Still remains
    With the sounds of silence

    On more than one occasion, my response to an action that my son did was out of proportion to the action itself. Usually, it’s because he repeated the same action, and there is an escalation of consequences. But sometimes, it’s driven by my trauma, insecurities, and fear about my son’s future.

    A few weeks ago, there was the Chocolate Bar Incident that I wrote about in a previous post that involved him lying about sneaking candy. The candy wasn’t the issue; the lying was, and it triggered a knee-jerk reaction to take away his electronics “for I don’t know how long.”

    I was so frustrated with his lying, and I didn’t understand why he was doing it. I had a hard childhood, and I feared that he was lying the same way that I lied because he felt unsafe like I did. I was also afraid that it was because of his impulse control and executive functioning issues. I needed to shock him with extreme consequences to change his behavior and stop him from lying. Otherwise, how could he go out into the world?

    Like I said…out of proportion.

    After I had time to cool off, I felt terrible. Yes, he struggles with impulse control and executive functioning, but so do a lot of people. Also, teenagers lie. It’s normal and doesn’t necessarily reflect on his future possibilities.

    I thought about how I responded and how I should have responded and felt like an asshole. Feelings of guilt and shame washed over me, and I feared that my response would be what stuck with him about this situation and that it would affect or define our relationship.

    I went in to apologize. I shared why I had my reaction, explaining how I was afraid he was having the same childhood and experiences that I did. That fear and projection about his future triggered my response because I wanted to change his path so that he didn’t have to endure the same challenges that I did. But I understand that wasn’t what was happening; it just looked the same. I told him I was sorry, and he accepted my apology like the sweet, kind, empathetic boy that he is.

    That, I am learning, is what will define our relationship. What matters isn’t the mistake. What matters is the repair.

    We all make mistakes. As much as we wish we could be perfect in our relationships, we’re human, which means we’ll stumble, say the wrong thing, or make a bad choice occasionally. Whether it’s a moment of lost patience, a misunderstanding, or a decision we wish we could take back, mistakes are inevitable. But here’s the thing: what matters most isn’t the mistake itself—it’s what happens afterward. The repair is what truly defines the strength and depth of a relationship.

    When we mess up, there’s often a sense of failure or shame that comes along with it. We worry we’ve damaged trust or created distance in the relationship. But the reality is that the most meaningful connections aren’t the ones that never face difficulty. They’re the ones that grow and evolve through those moments. It’s the repair process—the act of acknowledging the hurt, making amends, and working to rebuild trust—that ultimately makes relationships stronger.

    At the end of the day, it’s not the mistakes that define us—it’s what we do after them. We all face moments where we wish we had done things differently, but those moments can lead to greater understanding and intimacy if we approach them with humility and care.

    Our children don’t need perfect parents; they need parents who are real, who are trying, and who are willing to own their mistakes. Children learn more from our willingness to grow than from our attempts to be flawless. When they see us apologize, try again, and love them through the messy parts of life, they learn resilience, empathy, and the value of authentic connection.

  • Dream Big

    Dream Big

    The other day, I was driving my son to music camp. The camp was at the same place where he takes his drum lessons but, rather than private lessons, the camp groups the kids into bands that perform at the end of the week.

    When I asked my son if he liked the band experience, I expected his response to involve the difference between lessons and performing or what it is like to play with other musicians. Instead, his response centered around wondering if he would get on the Wall of Fame that the school had of previous students.

    I wasn’t entirely surprised by his response. Very often, his goals involve a championship. When we talk about hockey, he wants his name to be on the Stanley Cup. When we play Fortnite, he wants to be on the leaderboard or have his own skin like the influencers have. He talks about subscribers and likes for his Twitch feed and YouTube channel.

    As a kid, I remember being young and obsessed with getting my initials on every video game I touched to leave my mark on everyone who would play the game after me. At one point, my initials filled the high score screen of a game called Mr. Do that I played every day while waiting for the school bus.

    I played basketball in the driveway and imagined the next shot was a buzzer-beater to win the championship, and I tossed balls in the air and pretended that I faced a full count and needed a hit to win the game. Creating the ultimate clutch scenario and delivering is the dream of many would-be heroes, even those of us who were not destined for sports greatness. It added drama to a sport or game that I loved to play.

    I’ve heard interviews with professional athletes who had the same dreams, except they focused on achieving them. Even at a young age, they would spend hours working on their game, taking slap shots, making free throws, or swinging a bat. They aimed to become a professional athlete and help a team win a championship by delivering in that clutch moment.

    Whether it’s video games, sports, or music, that desire to be the best can be a great motivator. But what happens when achieving that dream becomes the bar? What if whether a dream is achieved becomes the only measure of worth?

    I love that my son has big dreams. For everything he has been through and everything he struggles with daily, he could have just as easily become a victim of his situation and have no dreams at all. But I’m afraid that if he doesn’t achieve his dream, he will resent the experience rather than be proud of himself for what he did accomplish.

    I realize those are my feelings and may not be his. It breaks my heart that his chances of playing in the NHL are minuscule, and because I’m disappointed for him, I’m expecting him to be disappointed, too. But my feelings are based on my frustration and anger at what his condition has taken from him, which probably results in a higher degree of disappointment, just like it results in a higher degree of admiration for what he can accomplish.

    Ultimately, my job as his parent is to let him have his dreams and make it okay, whether he achieves them or not. My job is to instill in him the ability to be proud of himself for his accomplishments and to encourage him to love the experience, the sport, and the time he could do what he enjoys. It’s my job to show him that there is a sense of accomplishment in doing something and then working at it to improve and become the best you can be, even if it doesn’t come with a trophy or picture on a wall.

    I’m a big believer in dreaming. If you don’t dream it, you can’t become it. – Magic Johnson

    Dream big, pal.

  • Sneaky

    For a while, I’ve been thinking that Apple’s Parental Controls were poorly implemented. We would set the controls, and then within a few days or weeks, we would see them change.

    As an engineer, I set out to troubleshoot the problem. At first, I thought it was because our son has two devices. Perhaps the changes weren’t propagating to one of them, and that device was corrupting the settings. But even after I ensured both devices matched, the setting would change again after a few days.

    One day, my wife casually mentioned giving my son her phone because he needed to “check something.” That’s when we figured out he had convinced my wife to let him use her phone and was changing the settings.

    Sneaky.

    Once we figured that out, we sat him down and told him what we learned. We covered issues with trust, money (Apple’s refund policy for something like this is less than generous), responsibility, and consequences. We took away his devices for almost a week, and when he got them back, we didn’t encounter any issues.

    For a while.

    The other day, my son said, “Dad, I like your drawings.” I’ve been drawing on my iPad, which I leave downstairs in the living room. He knows my passcode but not the parental control code. We chatted about respecting people’s privacy and boundaries and not using my iPad without asking, and I left it at that.

    A few days later, I discovered that the parental control settings had changed again. As I went in to fix all the settings, I realized that once you unlock the iPad, it didn’t require the parental code to turn off the parental controls. You can turn off the parental controls with the device’s passcode, which my son knew.

    When my son saw my drawings on my iPad, he was on it to disable the parental control code. His mention of my drawings turned out to be his undoing,

    Sneaky.

    Controlling his impulses and urges is hard enough for him as a teenager. My son’s intellectual and emotional challenges mean that the process will take more time. We’ve been at this long enough to understand that it’s not a flip that we will switch; it’s a gradual undimming until the light is at its full brightness.

    As we talked to him about these choices and the consequences, I felt conflicted. His ability to troubleshoot the problem he was facing and come up with multiple solutions is actually impressive. I know engineers with less tenacity and creativity. Using that ability to be sneaky and violate our rules, however, is the wrong expression of those skills.

    Our job as parents is to help him use his power for good.